December 20, 2013

My scans came back today and I AM CANCER FREE!!!!!! Oh yea Oh yea Oh yea!!!! I'm so excited right now!!! The MRI was stable meaning it didn't change at all and the PET scan didn't show anything!!

I have surgery on January 8th to take out my port because I won't need it anymore. This long bad dream has finally ended for me!!!!

December 18, 2013

I had my scans today. I'm really really hoping they are better than last time. It felt weird to be at the hospital because it's been such a long time since I was there. My port gave us some trouble too. It was thirsty they said lol whatever that means. But we finally got my blood out of it.

My hair has started growing back. Everyone today was saying how much it grew.

I'm having fun being back in school and am excited to see all my friends again! It feels good to be back to something normal. I like to write stories and draw the pictures then we get to publish them.

I went to my friend Breezy's birthday party last weekend and we had so much fun. We went bowling and she got a karaoke machine so we sang songs all night!

I made my first ginger bread house this weekend too. I had a lot of fun making it :) They are messy though.

We will find out tomorrow what the doctors say about my PET, CT, and MRI scans.

December 2, 2013

Oh my goodness I can not believe its been so long since I wrote a post! I'm so sorry guys! I had my final scans on November 5th and the results were not what we were hoping for. The Cancer still shows active. We're rescanning soon because the doctors think it's a possibility that's is just residual activity. Mom called doctors out of state and they all think the same thing after seeing my report.

We went on my Make-A-Wish trip to DisneyWorld and it was amazing! I got to meet all of the princesses and a lot of other characters too! It was seven days of Awesomeness! I had so much fun, I forgot about my cancer! I loved the warm weather and was sad to have to come back to the cold.

October 19, 2013

It's time to celebrate!! I just had my last chemo on Wednesday!!!! I am sooooo happy about that!!! Yay! Yay! Yay! My scans are scheduled for November 5th and we get to find out the results on the 7th. I can't believe I'm done!

We found out the date's for my Disney World vacation, which I'm so excited I could scream,  we leave on November 11th and return on the 18th! It's getting so so close! I want to meet Cinderella and see her Castle.  She's my favorite princess!

When we come back from Disney World I get to go back to school. I'll get to see all my friends everyday again. I'm very excited!!

September 28, 2013

Good news!! The doctor says I can go back to school if my counts are good next week! I'm super excited about that! I miss seeing my friends everyday. I hope I get the same teacher I had last year, Mrs. Hocker, because she moved up to 3rd grade. That would make me really happy, she's really nice! My counts in the past showed to be good and not drop too low so keep your fingers crossed for me. :)

Another exciting thing happened....I signed up for Tap Dancing classes and Cheer classes! I had my first Tap class on Thursday and I had so much fun! I was a little nervous at first because I'd never done it before but I had a lot of fun! My first Cheer class is next Wednesday and I'm excited for that too!

On Wednesday I had inpatient chemo, and they are remodeling the whole floor. They put up a wall where there didn't used to be one and they thought it would be a good idea to have the kids draw on it since it was just a temporary wall. I got to be the first one to put my drawing and I decided to draw a waterfall with a rainbow over it with the sunshine and grass. It was fun! I thought that I had three chemo's left after the one on last Wednesday, but I guess the next two weeks are going to be just labs so I only have ONE more chemo left!

September 24, 2013

It's been a long time since my last post, and I'm sorry. My mom and I have been house sitting for the past couple of weeks and there wasn't any internet there. But I'm posting now! Not a lot has been going on, it's been pretty low key.

I love this new song by Katy Perry called Roar. It makes me feel like I'm super strong and can do anything I put my mind to. My Beads of Courage are getting really really long. While I was house sitting I got to spend time with my puppies which always makes me happy. My appetite has been increasing, my mom says I'm always telling her I'm hungry! lol I only have FOUR more chemos left until I am done!!!!

  Disney World is getting closer and I'm getting more and more excited!

August 29, 2013

I am feeling awesome! I have so much energy and just want to play play play!! My schooling is going good, I am learning multiplication and cursive! I haven't been able to ride my bike for a while because it's been raining!!! I went to the Fair on Saturday and got to ride the train there and back. It was super cool, I'd never been on a train before that! One thing that was scary at the fair was that I got stuck up at the top of the Farris Wheel! SCARY!! We saw the radio station Country Legions there and they interviewed my mom about me.

Since it's been raining so much I haven't been able to play outside very much. Thank goodness I have my trampoline inside to jump on! I've been doing a lot of scrapbooking when I'm not doing school work or going to my appointments. I like it, it's the newest thing I've discovered I like doing.

Until next time.....please keep my in your prayers, they're working so far :)

P.S. I have friends that I want to play with but I don't have phone numbers or emails to get in touch. If you'd like to, please leave your phone number with my moms email saholcomb84@gmail.com THANK YOU!

August 19, 2013

We are so sorry that its been so long since an update. It's been difficult to write a post here! I had a chest CT scan and an MRI on August 8th. The CT scan was normal which is good because that means the cancer has not spread!! And the MRI shows that the tumor has shrunk even more and the doctors think that all that might be left is scar tissue!!!! We will know for sure the first week of November when we do a PET scan which will light up any cancer cells in my body. I am sure it won't show anything though.

I got to see all of my friends at school today. That was awesome! I was very happy to see them! I also switched out my 2nd grade books for my 3rd grade books. Looks like I'll be learning cursive finally!

I hope everyone is doing good and is happy, I am. I feel so much better and have tons more energy!

July 27, 2013

We met with the Make-A-Wish volunteer last night and we set up my wish! I wished I could go to Disney World! So me and my mom and my friend Loretta are going to Disney World in November! We get to go to the Magic Kingdom, Epcot, Animal Kingdom and Hollywood Studios! I'm sooooo excited I can't wait! I hope I get to meet Cinderella because she's my favorite princess. He gave me a Make-A-Wish Barbie doll too. He was very nice and asked me a lot of questions about what all my favorite things are.

I am feeling good since my chemo, except I'm a little sleepy so I have been taking naps during the day. I'm listening to my body is what mom and Nanny always tell me. Yesterday I had to go to the clinic to get my shot which I do not like at all. It hurts when they push it in.

July 26, 2013

 I LOVE riding my bike!! I have so much fun! I just don't like wearing my helmet, it's uncomfortable. But momma says if I wanna ride it I have to wear it. I am feeling much better from my sinus infection now! My momma and I went camping and it was a lot of fun! I rode my bike there too!

On Wednesday was my inpatient chemo. I got sick the morning after this time too. Last time I was sick for four days after I got my treatment. The doctor says the further I get into my treatment the harder it will be on my body. We are almost done with this crud though. I am scheduled to have another MRI and PET scan in two weeks. My treatment will continue until the end of October and the final scans are to be in the first week of November.

I have been trying to eat sour candy like the doctor said but it's hard for me. I don't like to eat it, which is weird because normally I love sour candy! My mom, brother and me went to the park and the lake on Monday and we had a lot of fun! It was so super hot! I've been doing a lot of school work lately, too bad I can't start school with everyone else. But at least I know it's not far off that I can join them again.

July 24, 2013

I am at the hospital today for my chemo treatment. My throat started to get swollen so my mommy took me to the clinic. They took my blood and checked a lot of things. They said I have a sinus infection and that my salivary glands might be trying to work again after the radiation. So, I have medicine I have to take for a little while to get better from the sinus infection and I am supposed to eat sour candy for the salivary glands! I've put on 9 pounds since I got my feeding tube, I am 62 pounds now! I feel good and have lots of energy, just have a runny nose is all. School starts for everyone next month, I wish I was going with them.

July 2, 2013

Hello!  I have been feeling so much better. This feeding tube is the bomb! Although it does have its downsides. Like having to be so careful to make sure it doesn't get infected. But I feel so much better and stronger and happier! I'm starting to gain weight back too. Also, we increased the amount that I get during the day, so my stomach is getting stretched. My appetite hasn't gotten a lot better but I am hungry sometimes where before I was never hungry. So that's good I guess.

Yesterday I got to go see my uncle. He's up here visiting and I am super happy to see him! I missed him a lot. We spent almost the whole day together yesterday! I went shopping today with my mama so I could spend some of my birthday money. I bought this really pretty Cinderella snow globe! I LOVE IT!!! I also went to Build-A-Bear and made myself a kitty on skates!

June 25, 2013

Oh so busy! A lot has happened guys! My Nanny and my Bobby came up to visit and I had such a good time with them! I got my birthday present early from them because they couldn't wait! LOL I got the American Girl doll Caroline Abbot!! She's so pretty and I love changing her clothes and playing with her hair! A lot of people came to the party, even my doctors and nurses! We went down to Portage Glacier which was cool. There were ice burgs in the water and the water was green! We dipped our toes in the water too and WOW was it cold!

My Mickey Tube is doing ok, it keeps trying to get infected but we are putting medicine on it everyday. I feel so much better now and have a lot more energy! My hair has been growing back too!! I CAN NOT WAIT till I have my long hair again! Me and my mommy went for a horse carriage ride and that was so cool! I pretended to be Lady Mary from the TV show Downton Abbey :) I collected a lot of money from my birthday and went shopping for scrapbook supplies and have been doing a lot of that lately. It's fun!

My Uncle Jeff and Cara come up to visit on Sunday and they'll be here for 10 days! I'm excited to see them! I've been having lots of visitors lately! That makes me a happy girl!

June 7, 2013

Wow time has gone by so fast! Sorry for the lack of updates on here, we have been so busy!!

I got my feeding tube put it. It was sore for a while (kinda still is) but it has made things so much easier. My mama can put all my medicines in through my tube now so I don't have to swallow them. I am also getting all the nutrients that I need so I don't have to worry about eating even though I still need to eat! I have been slowly putting weight back on and I feel so much better and have lots of energy again!! Yay it feels good to be me again!!

My birthday is coming soon! I'll be 8 years old :D! My Nanny and Bobby are coming up this weekend on Sunday! I'm so excited to see them I just can't wait!!! We are going to have a BBQ at my house for my birthday, I think it will be a fun day! We got lots of balloons and the theme is pink and zebra stripes.

I received a kindle and $100 in the mail yesterday from a very nice lady in Washington! I LOVE IT!!! Thank you so so much!!!! My grandpa got me a puppy, I named him Chasper. He is a Chihuahua. I can't have him at home though :( so I get to visit him when I go to my grandpas. Last Saturday I got to go to the Mary Poppins play in Anchorage. It was very fun and we got to sit very close to the front! Thank you Leah for winning me and mommy the tickets!

May 13, 2013

I went to see the surgeon to talk about my feeding tube today. He said it is a simple procedure but would take a while to heal all the way. They are going to put it in next week. I have been feeling better this week and haven't been as tired as usual. Only five more days of radiation left! I cant wait for that to be over!

I had a stranger come up to me in Fred Meyer the other day and ask me if he could buy me a game for my Wii. I thought that was super nice and just want to say thank you again! I picked out Mario Cart, its a really fun game to play!

May 7, 2013

Hello! On Friday I went to my school for a fundraiser event they put together and I had so much fun playing with and seeing my friends again! I think everyone was happy to see me too. I was in the newspaper which I thought was cool. I was on the front page and they talked about the night on Friday and some about what I have and have to go through.

When I was in the hospital last week I got to visit with the pet therapy dogs. I really like it when they come in to see me, it makes me happy. Also, some of the sailors from the USS Anchorage came to the hospital and I got to meet them and have my picture taken with them. They gave me 2 medals and a hat.

Yesterday my mom and me went for a bike ride, I gave her her Mothers Day present early (it was a bike) I thought she would like it and it would be something fun for us to do together while getting exercise. I was right about her liking it, she loved it! I get tired easy and have to take breaks when we're riding. My mom says it's ok and as long as we're having fun and I'm not hurting.

My radiation appointment got pushed to a later time today so I got to sleep in! The machine wasn't working so they're trying to fix it.

May 1, 2013

I'm at the hospital for chemo today. I also needed a transfusion again. Since my throat hurts so bad I'm not eating very well even though I'm trying the best I can. I lost 1lbs this last week and am getting closer to my feeding tube. I am 58 lbs now. I'm trying super hard but not gaining any weight.

I had a really good week last week. I got to go to the zoo on Friday with my mommy and it was fun! We saw Kali the baby polar bear. He was so cute I wanted to cuddle with him! I know that wouldn't be a good idea tho! On Sunday I went for a four wheeler ride with my grandpa and we roasted hot dogs. I really like going on four wheeler rides!

April 24, 2013

Hi! Today I had my appointment at the clinic, I didn't get any chemo but they did my blood labs. Everything looked good they said. The doctor is worried about my weight. They said I can't loose any more weight or I'll have to have a feeding tube put in. Because I am going through radiation I am not able to have it put in my nose, it will have to go in my tummy which means another surgery. I was very sad to hear this because I have been trying my best to eat but my throat hurts really bad from the radiation. We were supposed to meet with the surgeon tomorrow, but my mommy said to give me some more time to try since I got a mouthwash that helps to numb my throat. On Friday I have to go  back in so they can weigh me again. We went to the store today and got some food that I thought would be good and wouldn't hurt my throat so much to swallow. SMOOTHIES!! 

April 22, 2013

Radiation is going well since we remade my mask, it doesn't hurt anymore. The machine is very loud and I really do not like being held down to the table by my mask. My mom and I made a paper chain with the total number of days I have of radiation so that I can take one off everyday and see how many more days are left. I told the tech that the third or fourth time the machine goes around me I smell something like a dirty washing machine. He said that it doesn't actually smell like that but that the radiation is over stimulating my senses causing me to smell things that are not actually there. I didn't get any chemo last week and won't get any this week because I am getting radiation. I will get two doses on the third week instead of three because one of them does not mix well with the radiation. Then none again for two weeks while I finish up radiation treatment. I had to have my fourth blood transfusion last Wednesday which normally I wouldn't have needed but they said they have better luck with oxygenated cells so I was a little low on my red cell count and went ahead with the transfusion. I always feel so much better after I get those because it gives me more energy.

I spent the weekend with my grandpa and we went on a four wheeler ride on Sunday and I had so much fun! It was a very long one! We also made a fort in the living room out of the couches and pretended the house was a cruise ship!

Below are pictures of the Tomo Therapy machine (radiation) SCARY!!!!!

April 11, 2013

I got to go home today which always makes me happy. I had my second day of radiation and I did very well. I wasn't as afraid today. My mask is super tight and it hurts, so we are going to make another one tomorrow that will fit me better. Everybody says they are so proud of me and that makes me feel good :)

Dan Vannoy came to visit me this morning in the hospital and gave me a package from him and everyone he works with. We want to say thank you for all you are doing for us with the Our Sweet Alexia fundraiser.

After we got home today I did a lot of resting and didn't want to eat so much. Hopefully I will feel better tomorrow.

April 10, 2013

Today was my first day of radiation. It was scary and I cried. We decided it would be a good a idea if I thought of something to pretend while it was happening. The part I hate the most is the mask. It's so tight!! Thank goodness it didn't take so long. Three minutes for a CT scan and four minutes for radiation. I think tomorrow will be better, I just really don't like the mask! We are spending the night at the hospital tonight because I am getting all of my chemo medicines today. So far everything is going good!

April 9, 2013

On Saturday I went to St. Baldrick's Day and got to ride in a Hummer stretch limo! It was so super cool. I got to drink out of a fancy glass and it had cool lights. When I got there I got a sash representing I was a special child there. I got my face painted and I also got to ride in a firetruck! One of my chemo nurses shaved her head too.

I have been feeling very good and had lots of energy. I have been eating good too, my pants are getting tight on my tummy....I spent the weekend with my grandpa which was fun.

Tomorrow is a big day for me. I have all three chemo's and its also my first day of radiation. I drank a lot of water yesterday and today hoping that it wont take long to hydrate tomorrow that maybe I wont have to spend the night.

April 3, 2013

GREAT news!! I had my MRI and PET scans yesterday and got the results in today. In January when I was diagnosed I had 2 tumors for sure and they were uncertain about a third. The MRI and PET scans show that I only have one left. The tumor on the left side of my neck is completely gone and the one at the base of my skull is 1/3 smaller!! They weren't sure about there being a tumor in my tonsils because in the first scan they were swollen and bright. Now the only thing that shows is the tumor beneath my brain, and its so much smaller! The doctors are amazed at how well I am doing so far with just the chemo! I am super happy! I have been trying really hard to beat this stupid cancer and it looks like its working! Thank you everybody for your prayers! But keep them going because the battle isn't over yet.

I start my radiation therapy next Monday. I'm nervous about it but I know I have to do it and it's encouraging to know that its getting smaller.

March 31, 2013

Happy Easter everyone!!! The Easter Bunny came to visit me! He's fun, but I know what Easter is really about. Thank you Jesus for dying for my sins.

I'm sorry it has been so long since my last post, I have been super busy. We moved and have been unpacking and stuff. I had to go to the hospital on Thursday because I had a fever and my red and white cells dropped again. I had a transfusion and am feeling much better. We got to come home yesterday. I have another MRI and PET Scan on Tuesday. On April 8th I start my radiation. I'm scared about that.

March 17, 2013

Hello! I got to go stay the night with one of my momma's friends house last night and it was super fun! We went for a walk and we went on the four wheelers. Summer time is coming!!

I got to see my grandpa today too which I was happy about because he has been out of town working for almost a month. He brought me some new hats and a new sweatshirt. 

I have been feeling great and eating good and playing lots. I'll talk to you again tomorrow!

 

 

March 14, 2013

Hello everybody! Things are going very good for me! I had my treatment and all my counts are awesome! My white cells especially are high this week. The doctor said it could be good or it could mean that I'm trying to get sick, but I'm believing its because I'm doing good and have so many people praying for me!

We went to the radiation center again this week. The nurses and my mommy think it will be good for me to practice so I won't be scared when I have to do my radiation in a month.

When I went to the clinic there were 3 big bags full of goodies for me from my pediatricians office. It was a big surprise! I'm such a lucky girl because I keep getting surprises! Thank you to EVERYBODY!!

March 11, 2013

 I have  been doing very well! After I got antibiotics for my fever I didn't get another one and have had a lot of energy. My mom and I went to see Oz The Great and Powerful in 3D and it was good. Kind of scary in some parts especially since it was 3D because it comes out at you. I slept in super late today and feel very rested. I did have some pain in my shoulders which the doctor says is from either the Neulasta shot I get every three weeks or it could be from the Vincristine that I get weekly or it could be from both, but either way it has gotten better.

 

March 8, 2013

Hi!! Yesterday I ended up having to go to the oncology clinic to get some antibiotics because I had a fever. It didn't take long and that was nice. They said my counts were all still good and since I had a transfusion my red cells were back up and looking good again. I'm tired tho so I've been taking it easy. So far I haven't had another fever.

March 7, 2013

 Yesterday was a very big day for me! I had chemo in the morning and that went well. My counts were good except my red blood cells were too low again, but I didn't feel tired or sick! They told me I needed to have another transfusion :(

I had an appointment at the radiation center to make my mask for when I do my radiation. They game me some medicine to help me stay calm but it didn't work so well. I was still really scared, but I had my mama right there with me and she played my favorite songs on her phone while she held my hand. They put a hot wet sticky plastic flat mask on me and it formed to my face so I can't move when they do my radiation. It was very scary! Then they put cold wet wash clothes on top to cool it down so it would get hard and the water was running on my face and eyes. There was nothing fun about making my mask!


On a better note as me and my mama were going inside the hospital we saw a helicopter that goes from one hospital to another. I saw them from my room too. I can't believe how many times they come and go in one day!

March 5, 2013

Busy busy busy we have been so busy! I have been feeling really good this last week. We got a different kind of medicine that makes me not feel yucky. It's just a pill that I swallow instead of it melting in my mouth. I don't like the taste of that one. It made me sick, so when I got all three of my chemo medicines I got really sick the days after. But this time I didn't get sick at all because I was able to swallow these new pills! SO I DIDN'T GET SICK!! I had lots of energy and felt great. I even got to go bowling!

I had an appointment with the Ear Nose and Throat doctor today. My voice has been a little funny so he wanted to look at my voice box. I had to sniff some gross stuff that tasted like alcohol and he looked in through my nose down my throat. I didn't have a good time, I cried. I don't like all the things I have to do sometimes.

Tomorrow I go in for chemo again. I think everything will go as planned. I have been feeling good so I think I won't have to spend the night.

My family and I also just want to thank everyone for your help, love and support! We love you for it and pray that you'll be blessed! THANK YOU EVERYONE!

February 27, 2013

Hello everyone! I am here at the hospital today getting my chemo medicines and will spend the night here. I have an appointment with the radiation doctor in the morning to talk about some things. I think I will ride there in the golf cart! It's fun!! I had two visitors today from the National Gaurd and they brought me a basket full of goodies. My favorite is the Polaroid camera and the scrapbook to put my pictures in! I have been taking pictures of my mom and dad and me and the nurses so far. We tried to post the picture we took but we cant do it from mommy's phone. Thank you so much to everybody! Also, me and my brother and parents get to go on base and have a tour and see the jet planes!! I think that is so cool! I can't wait to tell TJ! 

I have been eating lots better, they gave me some hungry medicine so now I'm hungry all the time! But I think it's good because I have gained a little bit of weight. I have lots of energy and they said all my counts are beautiful. I don't know what that means but it must be good! 

February 23, 2013

Hi everybody!! Sorry I've been so busy! I just want to say thank you to everybody who has been sending me gifts and been helping and writing to me. You are awesome!

I went to the clinic on Wednesday and my counts are all back up and I'm doing good! Im getting braver about the poke I have to get in my port. I didn't even cry last time! I feel so much better except for yesterday, I wasn't feeling too good yesterday. I've been doing a lot of coloring and beading.

Tonight I'm spending the night with my grandpa and we are going to watch the fireworks!

February 17, 2013

I am feeling much better now! I got to go home last night which made me very happy. I started eating which my mommy says makes her super happy. The doctor says I need to do some excersizing so I'm going to start playing Frisbee Golf with my mommy and daddy. I like to play that. I spent a lot of time in the arts and crafts room while I was in the hospital and made pictures for my nurses.

February 14, 2013

Update on Lexi-

Her red blood cells have dropped significantly and is having a blood transfusion today. We also just found out from her blood tests today that her white cells have dropped by half overnight. She is being admitted to the hospital for a couple of days until her counts come back up. We are trying everything to get her to eat with no success.

Thank you everyone for your prayers and support during these hard times.

February 12, 2013

Hello! My mommy and I went and talked to the principal at Mat-Su Central School to enroll me in home schooling. We brought home all the books I need for Math, Reading, Language Arts, Science and Social Studies. I am very excited to get back to work on my schooling. We did some math today because it is my favorite subject. I also got to go into my school at Tanaina and say good-bye to my friends until I get to go back after all this is over with. They told me I can come and visit whenever I want which made me happy because I like it there so much.

Tomorrow is my fifth week of Chemo therapy. Wish me luck!